Tastes like Chicken

Its now 28 days into phase 1 of the treatments. So far I have been in hospital everyday this week. This has taken a toll as have been half asleep all week. Have lost almost all taste now. Everything tastes like Chicken... however Chicken does not taste of anything either. Have taken to eating anything with different textures.

I have now had my first lumber puncture, and the bone marrow test. After this I end up having to spend most of rest of day on back to let Chemotherapy in the spine settle down. This stops me from sleeping much, wake up feeling fairly bad on Tuesday. I have now cut off my hair on completely so when I go through my list of symptoms I seem to get more sympathy than normal. The doctors and nurses are fantastic today. They can see I'm not feeling great and go out of their way for me. Hopefully some of the side effects can be treated making life a little more comfortable. In a situation where the main treatments are so long term any quick wins would more a massive moral boost. I am referred to a ear specialist on Wednesday hopefully get one of these sorted out. Also get given some further medication and painkillers to treat some of the other side effects.

I am been looked after well by Mum & Dad since Iain has gone away. I am feeling a little crowded, however this is partly down to been tired and the effect of the steroids. Dad has had a look at car and is helping me get it ready to sell. Would be fantastic if I can get it sorted while they are here as will save me meeting random people picking up infections. Going to advertise for £695 but will see what I get offered.

I see the ear specialist on Wednesday, I really hope that I can get this problem sorted. However it is decided that its probably a referred pain from my mouth. End up booked into seeing a dental specialist on Thursday. I suspect a tooth may need taken out, however will low immune system and hemoglobin this may not be possible until after treatment. I will have to wait and see what is said tomorrow.

After a heavy first half of the week, I am still tired on Wednesday morning, however the extra blood which I was given on Tuesday begins to kick in by lunch and things start to pick up again. Ups and downs are what I have to expect now. As long as the bone marrow test comes back positive then it is all going well whatever the food tastes like..